The National Institute of Allergy and Infectious Diseases (NIAID) is excited to advance discovery and innovation in infectious diseases and immune-mediated disorders research by leveraging data and data science approaches. Towards this end, NIAID will conduct a series of ideas and innovation webinars that bring together experts and stakeholders in data science, infectious disease, immunology, and immune-mediated disorders.
Through the webinar series, participants will have the opportunity to provide insights into the current landscape of data science research and development, as well as offer ideas that promise to shape the future of data-driven immune-mediated and infectious disease research. The webinar series will serve as a platform for collaboration, idea generation, and networking among participants and generate foundational materials that is expected to inform the prospective role of data science in advancing NIAID’s mission.
Join the Conversation
The organizers have created a website that allows participants to share ideas about how data science will transform infectious disease and immunological research ten years in the future. We encourage everyone to join the conversation and share their thoughts. To login, please click the button below.
Harnessing the Power of Data for Immune-Mediated and Infectious Disease Research - An Expert Panel Discussion (Recorded on February 26th, 12:00-1:30 ET)
This event was the first in the series activities that are intended to initiate discussions on provocative and untapped research topics at the intersection of biomedical data science and immune-mediated and infectious diseases.
Our expert panel engaged in a moderated discussion following short talks where they highlighted the current landscape, future challenges, and the potential of data science within NIAID’s primary mission to conduct and support basic and applied research to better understand, treat, and ultimately prevent infectious, immunologic, and allergic diseases.
Webinar Recording
Agenda:
12:00 - 12:15 p.m.
Welcome, Dr. Chris Marcum
Dr. Jill Harper, NIAID Deputy Director for Science Management
12:15 - 12:30 p.m.
Setting the Stage Stephany Duda, Ph.D. Event Co-Chair Associate Professor of Biomedical Informatics School of Medicine at Vanderbilt University
12:30 - 12:40 p.m.
The Importance of Data Being Global Lynda Stuart, M.D. Ph.D. Deputy Director of Vaccines and Immunobiology Bill and Melinda Gates Foundation
12:40 - 12:50 p.m.
All Datasets are Local: The Missing Pieces of Collaborative Study Design that Can Lead to Incorrect Inferences Keri Althoff, Ph.D. Associate Professor of Epidemiology Johns Hopkins University
12:50 - 1:00 p.m.
Framing the Problem: Three Structural Challenges for Data Science Purvesh Khatri, Ph.D. Associate Research Professor of Medicine Research Institute for Immunity, Transplantation, and Infection and of Biomedical Data Science Stanford University
1:00 - 1:15 p.m.
Moderated Panel Discussion
1:15 - 1:25 p.m.
Question and Answer Session
1:25 - 1:30 p.m.
Closing Remarks
Ethical, Legal, and Social Implications of Harnessing Data to Advance Immune-Mediated and Infectious Disease Research - An Expert Panel Discussion (Recorded on April 16th, 2:00-3:30pm ET)
The power of data has the potential to transform immune-mediated and infectious disease research. Realizing this potential will necessarily involve careful consideration of bioethical concerns at scale: from issues affecting individual patients and their families to those affecting diverse communities around the globe. The aim of this webinar is to navigate the ethical, legal, and social implications (ELSI) of data science as recent and future innovations shape immune-mediated and infectious disease research.
Webinar Recording
Agenda:
2:00 - 2:15 p.m.
Welcome and Summary of Webinar Topic Motivation
Stephany Duda, Ph.D., and Dr. Purvesh Khatri, Event Co-Chairs
2:15 - 2:30 p.m.
Can Data Sharing Initiatives Prevent Another Surgisphere Fiasco?
Dr. Bradley Malin
Accenture Professor of Biomedical Informatics, Biostatistics, and Computer Science
Vanderbilt University
2:30 - 2:45 p.m.
More Open & Equitable Data Science: The Opportunities of the New Pandemic Treaty Dr. Alexandra Phelan, S.J.D, L.L.M, L.L.B
Assistant Professor Center for Global Health Science & Security, Georgetown University Medical Center &
Adjunct Professor, Georgetown University Law Center
2:45 - 3:00 p.m.
Over/Under: Ethics and Regulation in Big Health Data Research Ms. Megan Doerr, MS, LGC
Associate Director
Sage Bionetworks
3:00 - 3:15 p.m.
Panel Discussion and Response
3:15 - 3:25 p.m.
Question and Answer Session
3:25 - 3:30 p.m.
Closing Remarks
Breaking the Silos: Opportunities and Challenges of Harnessing the Power of Data to Advance Immune-Mediated and Infectious Disease Research - An Expert Panel Discussion (Recorded on May 14th, 2:00-3:30pm ET)
Transdisciplinary collaboration is critical to harnessing the power of data so that it can be used to rapidly transform the research landscape and advance science. Traditional research silos - which isolate laboratories, scholars, and research centers from one another - stymie essential partnerships that can bring together expertise, insights, and data to more rapidly and effectively address challenging research questions. In this webinar, we examine the data silos that challenge immune-mediated and infectious disease research, highlight opportunities for breaking these silos, and seek input from the research community on where future efforts should be leveraged to foster rapid data sharing and broader collaboration.
Webinar Recording
Agenda:
2:00 - 2:15 p.m.
Welcome and Summary of Webinar Topic Motivation
Stephany Duda, Ph.D., and Dr. Purvesh Khatri, Event Co-Chairs
2:15 - 2:30 p.m.
Title: Breaking the data silos: Lessons learned from the trenches
Raphael Gottardo, Ph.D.
Scientific Director, Translational Data Science Integrated Research Center Fred Hutchinson Cancer Research Center
Professor, Vaccine and Infectious Disease Division, Fred Hutch
Professor, Herbold Computational Biology Program, Public Health Sciences Division, Fred Hutch
J. Orin Edson Foundation Endowed Chair, Fred Hutch
2:30 - 2:45 p.m.
Title: Solving medical mysteries through collaboration and data sharing
Alexa McCray, Ph.D.
Professor of Medicine, Harvard Medical School
Principal Investigator, Undiagnosed Diseases Network (UDN)
Professor of Medicine, Beth Israel Deaconess Medical Center
2:45 - 3:00 p.m.
Title: Joining it all up - integrating pathogen and human genomics with patient record data
Ewan Harrison, Ph.D.
Career Development Fellow, UKRI Innovation Fellowship, Wellcome Sanger Institue
Senior Research Associate, Department of Medicine, University of Cambridge
Honorary Fellow, Department of Public Health and Primary Care, University of Cambridge
3:00 - 3:15 p.m.
Panel Discussion and Response
3:15 - 3:25 p.m.
Question and Answer Session
3:25 - 3:30 p.m.
Closing Remarks
Organizing Committee:
Purvesh Khatri, Stanford University – Co-Chair
Stephany Duda, Vanderbilt University – Co-Chair
Christopher Marcum, NIAID – Federal lead
Liliana Brown, NIAID
Ishwar Chandramouliswaran, NIAID
Anupama Gururaj, NIAID
Jason Hataye, NIAID
Jane Lockmuller, NIAID
Emily Ricotta, NIAID
Steve Tsang, NIAID